Summer summer time..

Bittersweet feelings as the school year comes to an end, it feels like yesterday that i walked my oldest two into their very first school to join their very first Kinder class..Now i walk down these colorful halls, wishing life would just slow down. After this summer i will be walking my 4 year old in to his very first year of school. I will have two First Graders. Not to forget this summer i will no longer have a 0 year old Eden is turning 1. Waaaah!! Life is flyin!
I sit here on my computer working over our summer schedule for the kids, trying to plan trips around me and jose's work schedules. YEP! that's right, this SAHMomma got a JOB! The most exciting thing about it, is i get to work from home. yay! Its been a little while since i have a job other than taking Photos! Life is changing and flying by for this house, for sure! Our youngest Boy Leeland has NF1, i have written about it in the past so its in my archives. But this month is NF Awareness month, searching for a cure is something we continue to strive for. Leeland has continued to show symptoms as he grows. Thank fully he has zero tumors, and we will continue to hope for the best for him.
Many days like today i feel so overwhelmed and i'm super exhausted, i know i mention that a lot in previous posts. But life just goes by so fast, our children grow so fast. i feel like sometimes i blink and were celebrating another birthday, another year passes. I love the life we have, though it be challenging it is the best life .

Comments

Leeland Ezra

As some of you may know, Leeland was diagnosed with a genetic disorder called Nuerofibromatosis (NF1) at 6 months. At the time he presented with 1 side effect (at 6 months) he is now 3 and between the time when he was first diagnosed and now he has shown 6 new signs of NF1. Here’s a little info on Nuerofibromatosis. Nuerofibromatosis is caused by genetic defects that either are passed on by a parent or occur spontaneously at conception. The specific genes involved depends on the type of nuerofibromatosis. In this case neither my husband nor I carry the gene. And Leeland has NF1 NF1 gene is located on Chromosome 17 this gene produces a protein called nuerofibromin, that helps regulate cell growth. The mutated gene causes a loss of nuerofibromin, which allows cells to grow uncontrolled. What is NF1? It’s a genetic disorder that causes tumors to grow on nerve tissue. —Brain —Spine —Nerves Tumors are usually benign, but can sometimes become ...

How much is TOO much..

So in my family there are A LOT of Alcoholics, and sometimes its just too much for me..So what do you do about taking what those people say, while there in that state of mind, with a grain of salt? Because sometimes i just want to straight up sucker punch them in the face! Dont get me wrong now, im not opposed to drinking ..Having a drink with friends and family is fine with me, BUT drinking everyday to get drunk just doesn't cut it..And i hate the excuse, i work all week, im tired so i deserve a drink. okay yes it may be true you may work so hard you feel a drink will calm your nerves but seriously get drunk every time?!? Then i have those in the family that get drunk and... A. Talk a lot of crap about people non stop B.could care less what anyone is talking about and want the attention on themselves C.Repeat themselves over and over D.become very abusive to anyone an...

Leeland ❤️

Wow, where do I begin.... We have been going 100 miles an hour it seems, life has really just been flying by. And it seems like every time I think about writing, something else happens. I don’t know about everyone else, but being a Mom is exhausting lol. Whew!! Let’s start back in December, day after Christmas. Leeland had a scheduled hearing test, and it was determined he was unable to hear at a normal level. Right after that appointment (same day) he saw the ENT who determined leelands hearing issue was due to retained fluid in both ears. No infection, which meant he would need to get tubes placed to constantly drain both ears. Leeland has a speech delay which has also been a side effect of the fluid build up in both ears. So we set a surgery date in January for tubes and then a month after a retest for hearing. January 15th came and Leeland did awesome in surgery. Almost immediately after...

Cecily

Search This Blog