Cecily

As some of you may know, Leeland was diagnosed with a genetic disorder called Nuerofibromatosis (NF1)  at 6 months. At the time he presented with 1 side effect (at 6 months) he is now 3 and between the time when he was first diagnosed and now he has shown 6 new signs of NF1.  Here’s a little info on Nuerofibromatosis.  Nuerofibromatosis is caused by genetic defects that either are passed on by a parent or occur spontaneously at conception. The specific genes involved depends on the type of nuerofibromatosis. In this case neither my husband nor I carry the gene. And Leeland has NF1    NF1 gene is located on Chromosome 17 this gene produces a protein called nuerofibromin, that helps regulate cell growth. The mutated gene causes a loss of nuerofibromin, which allows cells to grow uncontrolled. What is NF1?  It’s a genetic disorder that causes tumors to grow on nerve tissue. —Brain —Spine —Nerves Tumors are usually benign, but can sometimes become ...

As i sit here staring at my screen, while James Arthur plays in the back. all i think about it my bed, why in the world am i even doing this right now, i'm so damn exhausted. But all 5 of my children are sleeping so peacefully and i may never get a chance to type this before the month is over. You see how well i am keeping up with this huh? Where to begin  hmm. Lets start with this, Ezra our 2 year old broke his femur over the summer, 6 long weeks in a Spica cast was a really stressful time.  the first few weeks after breaking his leg i literally slept like 12 hours IN TWO WEEKS. why am i not dead right now?!?!haha, no seriously. As tomorrow's tasks begin, the months days come to a screeching halt. It is almost fall ladies and gents, and who doesn't love the hell out of Pumpkin flavored everything.. So long August, you were a hell of a bitch to get through .. 

     In life  we all go through rough patches, some longer than others. its those rough patches that grow us, mold us into the people we become. Broken hearts are the most awful things to endure, being torn between making others happy and being happy yourself. something people experience on a daily bases, but what about that broken heart do we learn .. what do we take away from that pain? No one wants to live a life and not be happy, lately ive seen this quote from a reality star thrown around. "living my best life" everyone wants to live their best life, we do.. In a relationship, a committed one at that we are "living our best life" well i'd like to think that we are. But what changes? why do people go from "living their best life", to simply not living for themselves at all?  does that make sense? i like to think that my self worth is actually something that i thrive on. I loved to be "wined and dined" as they say, i am actually a HUGE rom...

  Bittersweet feelings as the school year comes to an end, it feels like yesterday that i walked my oldest two into their very first school to join their very first Kinder class..Now i walk down these colorful halls, wishing life would just slow down. After this summer i will be walking my 4 year old in to his very first year of school. I will have two First Graders. Not to forget this summer i will no longer have a 0 year old Eden is turning 1. Waaaah!!  Life is flyin!   I sit here on my computer working over our summer schedule for the kids, trying to plan trips around me and jose's work schedules. YEP! that's right, this SAHMomma got a JOB! The most exciting thing about it, is i get to work from home. yay! Its been a little while since i have a job other than taking Photos!  Life is changing and flying by for this house, for sure! Our youngest Boy Leeland has NF1, i have written about it in the past so its in my archives. But this month is NF Awareness month, sea...

Never fails, Texas weather always puts a damper in my plans. Tuesday called for dental appointments for the little ones (not in school) a dine in lunch date and maybe a trip to target.. after all 3 kids are a piece of cake VS 5 and why not take advantage. Buuuuuuut NO! Texas decided to shut down its entire system due to dangerous weather conditions.. It literally was like 70 degrees yesterday, my kids were playing outside in shorts. in shorts you guys!  BAM today its 25 degrees, sleet, snow and icy roads. Oy snow days are not for the weak. having to entertain 4 children who cant play outside alllllll day and throw in a 6 month old who is the sweetest cutest spoiled little thing who likes, scratch that DEMANDS to be carried all hours of the day. My older two who are in school kicked nap time to the curb once they started school for obvious reasons. So getting them to nap along with the younger siblings is like pulling teeth.. haha seriously!  Id like a snow day from this ...